Meghan's Story

I wrote the letter that follows to the Valley News during the 1998 Christmas season, a year after my daughter Meghan, who is now 16 years old, underwent open heart surgery. It contains our family's strongest feelings†from our most anxiety filled time. For any parent to suddenly have a child with a chronic illness is one of the hardest crosses to bear. Not only is it overwhelming to decipher and choose all of the medical options, but one is never guaranteed a successful result. Suddenly, life and death are very clear. I'll let the letter speak for itself:

What was not mentioned in our letter was that Meghan is the oldest of a large family. At the time of her diagnosis, we were one week away from having our seventh child. To stay positive and suppress negative thoughts was an incredible task. Under normal circumstances, bringing a new baby into a family presents enough new challenges. My husband, Patrick is self-employed. Providing for our family financially falls on his shoulders, and prioritizing became essential. Not a day goes by that we don't give thanks for all of our beautiful children.

There are so many stories to tell. Stories about choices, life changes, coping, praying, surgery options. Even funny now†but not so at the time†is the time when we were supposed to be flying home from Cleveland to Hartford, CT. The de-icing agents were not working on the wings of the plane. The pilot made a U-turn in the sky and returned to Cleveland. The airport was a madhouse, with cancellations happening due to an unusually early and large snowstorm in November. Meghan was in a wheelchair and we had her 5-month old brother with us. But we got through it. All of these emotions, decisions and life changes feel insurmountable at times. But each day is a new one, and we take on the challenge.

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